Greco's port

Greco had his port placed in his chest today. It was the longest wait!! So aggravating to make a baby wait when he hasn’t eaten. Plus the other kids were in the waiting room waiting too. Waiting makes me so tired. I am so sleepy! My kids are so good and patient. They are taking all of this in stride. Greco is sick and we are all going to be a part of each and every step of the way. The surgery was only 20 minutes, but the waiting was all day. Today was hard. But it is only the beginning. Radiation starts tomorrow!

#diffuseintrinsicpontineglioma #grecoromanbouzakis #pediatriccancer #takedowncancer #livegreco

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