A very slow growing tumor

We take Greco in to have another MRI and a simulation so that the radiologist can build a mask for him to wear during radiation. It has been 3 weeks since discovery, and the tumor has not grown. Good news. The radiologist thinks it is a very slow growing tumor. The nurse there is wonderful and makes us feel good about choosing to stay at Florida Hospital. Poor Greco will have to have a port placed in his chest, so that he can be sedated for the treatments. So we met with the surgeon on the 29th to discuss the port. The longest wait! But surgery is scheduled.My mom arrives to spend 11 days with us. I am glad she is here, but I am so tired.

#diffuseintrinsicpontineglioma #grecoromanbouzakis #pediatriccancer #takedowncancer #livegreco