The oncologist heard back from St. Jude’s...

The oncologist heard back from St. Jude’s and they suggested radiation and chemo. They had an experimental drug and no positive results. This would mean living in Tennessee for months without our family and no guarantee. Not sure if we are willing to do this. Other DIPG studies were happening in other places in the world, none had positive results and many required biopsies and wanted to use experimental chemo. Just don’t know if we want to make Greco sick so that he can die. This is so hard. Why is this happening to us?

#diffuseintrinsicpontineglioma #grecoromanbouzakis #livegreco #pediatriccancer #takedowncancer